6-7 PM: Registration and Cocktail Hour
7 PM: Dinner and Program (followed by entertainment and dancing)
Please join us for the 17th annual NYC Countdown to a Cure — a fantastic night of dinner, drinks, live music, silent and live auctions, connecting with patients and other community members, and networking with New York’s leading professionals. This year, our goal is to once again raise over $1 million to support the search to find a cure for FSGS and other causes of Nephrotic Syndrome.
As always, your safety is our top priority. We're working with Pier Sixty to hold a safe event that adheres to all local, state, and CDC guidelines.
Together, we can countdown to a cure!
NephCure's Global Visionary Award
Irving Smokler, PhD
We’re incredibly proud to recognize Irving Smokler, PhD, with NephCure's Global Visionary Award for more than 20 years of unparalleled leadership, dedication to patient families, and expanding the bounds of knowledge for rare kidney disease research.
Dr. Smokler, a patient parent himself, co-founded NephCure with his wife, Carol, and three other families in 2000. At that time, there was hardly any research into Nephrotic Syndrome, much less any concentrated efforts to discover a cure for these rare and debilitating kidney diseases.
But with Dr. Smokler’s passion and dedication, the path forward for glomerular disease research, and for affected families, has been forever altered. He steered NephCure into becoming a research-focused patient advocacy group, gaining the support of key leaders from Congress, the NIH, and the FDA.
Dr. Smokler enlisted families to share their stories with legislators, who responded by urging NIH to increase funding for FSGS and NS. He presented testimony to the congressional appropriations committees, who then wrote language in their bills increasing support for FSGS and NS research at both the NIH and Department of Defense. He also served on the National Scientific Advisory Board of the National Institute of Diabetes and Digestive and Kidney Diseases, which provides scientific direction for the NIH’s NIDDK research portfolio.
Dr. Smokler’s foresight helped lead to the formation of NEPTUNE and CureGN: pivotal, long-term, multi-center observational studies that have provided critical research insights, leading to more efficient clinical trials and paving the way for the current surge in new potential treatments for rare, protein-spilling kidney diseases.
Equally important to Dr. Smokler has been the opportunity that NephCure provides for patient families to come together. Through NephCure, patients have a space to connect and support one another — a crucial need in any rare disease community. Dr. Smokler’s concern for each and every patient and their stories continues to guide NephCure’s work.
NephCure is the organization it is today because of Dr. Smokler, and we’re excited to honor and celebrate his lifetime of achievements at the 2021 Countdown to a Cure in New York.
2021 Medical Honoree
Frederick Kaskel, MD, PhD
Dr. Frederick Kaskel is an internationally recognized clinical investigator and educator in pediatric nephrology. He is the former Vice Chairman of Pediatrics and Director of Pediatric Nephrology at the Albert Einstein College of Medicine. He is a Past President of the American Society of Pediatric Nephrology and the Congress President of the 15th Scientific Congress of the International Pediatric Nephrology Association. He received his doctorate in Physiology and Medical Degree from the University of Cincinnati College of Medicine. He trained in Pediatrics and Pediatric Nephrology at Montefiore Medical Center and Albert Einstein College of Medicine, respectively, and was a recipient of an NIH National Research Service Award.
Dr. Kaskel's current research is aimed at preventing the epidemic of obesity and cardiovascular risk factors, hypertension, and progression of chronic kidney disease. He has received continuous research support from the NIH and directs the Training Program in Pediatric Nephrology, which prepares new physician investigators for careers in the field. At this time in his career, he is focused on assuring the training of the next generation of pediatric nephrologists and investigators while providing the most current expertise in care of children with kidney disorders.
2021 Corporate Honoree
"At Travere, we are In Rare For Life."
Travere Therapeutics is a biopharmaceutical company specializing in identifying, developing, and delivering life-changing therapies to people living with rare disease.
The Kerry BLUE Band is a group of premier musicians who have toured individually with Bob Hope, Carol King, Dick Clark, Gloria Estefan & the Miami Sound Machine, Linda Ronstadt, Chuck Berry, Fats Domino, The Duprees, and Maynard Ferguson (among others).
When they come together, their excitement is ELECTRIC! The Kerry BLUE Band is a high-energy R&B and classic rock band that will leave you thoroughly entertained.
The health and safety of our patients, donors, and supporters are at the forefront of all of our decisions. Because we care about your safety and wellbeing, the format of this year’s Countdown to a Cure event will be altered to comply with the guidelines and procedures provided from the CDC, Chelsea Piers, and New York state and local health officials.
Please email events@NephCure.org with any questions.