The NephCure Patient Summit

Join us for an empowering and informative experience at the 2024 NephCure Patient Summit and Youth Summit. This event is dedicated to all individuals, caregivers, families, advocates, and healthcare partners impacted by rare, protein-spilling kidney diseases.

Our goal is to provide education, support, and hope to those living with rare kidney disease (RKD). We invite you to connect, learn, and be inspired as we build memories in the historical town of San Antonio, TX.

"This was my first time attending the NephCure Patient Summit and I was so happy I was able to attend. For the first time I truly felt like I wasn't alone while I battle RKD. I walked away with a lot of information to help manage the unknown road ahead."

— Cecily M., Adult Patient


Event Highlights

  • Inspiring Speakers: Hear from leading experts, researchers, and individuals who have dedicated their careers or are personally affected by RKD.
  • Disease Education: Learn from NephCure specialists who are at the forefront of RKD innovation and working to improve the lives of RKD patients.
  • Interactive Workshops: Gain valuable insights into managing the challenges of living with RKD such as diet and nutrition, mental health, and more.
  • Community Networking: Connect with others who understand your journey and build a support system.
  • Advocacy Opportunities: Learn how to be a strong advocate for yourself and the RKD community.
  • Youth Empowerment: The Youth Summit offers a safe space for young kidney warriors and their siblings to connect, learn, and have fun.

"It was new for me to be surrounded by so many RKD patients, and I loved hearing others' stories of advocating for their health. With every story there was a different path, and we offered each other hope across our similar experiences. I left feeling empowered."

— Seferiana D., Adult Patient

Event Details

  • Date: May 9-11, 2024
  • Location: Hyatt Regency River Walk, San Antonio, TX
  • Registration: Registration opens October 16, 2023. The cost is $50 per person. 
  • Hotel Reservations: The hotel reservation (one hotel room) is included in the registration process for a $300 fee for two nights.

    NephCure Patient Summit registration fees will not be refunded after April 1, 2024. Prior to this date, fees can be refunded minus a 50% service charge.

New This Year: Fundraise Your Way to Summit!


Attending the NephCure Patient Summit can be a life-changing experience for patients, families, and caregivers dealing with RKD. However, we also recognize that the costs associated with travel and registration can be a barrier. That's why we've created a fundraising platform and guide to help you make your way to the summit without financial worries.



Thanks to our sponsors, we are thrilled to be able to offer a select number of scholarships to our patient community. Please complete this form to apply.

Get Involved


We welcome sponsors, volunteers, and speakers who share our commitment to making a difference. Contact us to learn how you can contribute to this inspiring event.

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Thank you to our generous sponsors for supporting Rare Kidneys on the Hill Day 2024!

Platinum Sponsor


Gold Sponsor


Sliver Sponsors

Boehringer-Ingelheim Logo Light Green

Bronze Sponsors

Alexion Pharmaceuticals Logo

Youth Summit Sponsor

Patient Summit Scholarship Sponsor