Rare Kidneys on the Hill Day July 11 - 12, 2023

Can't join us in D.C.? Share your rare kidney disease story #RKDWeek2023 and follow @NephCure.

Thank you for participating in NephCure's Rare Kidneys on the Hill Day!

As a constituent, voter, and, most importantly, a person impacted by rare kidney disease (RKD), your voice matters. Rare Kidneys on the Hill Day provides an opportunity for you to educate your members of Congress  and put a face to RKD. By sharing your story, you can help advance policies critical to the rare kidney disease community, including research funding, improved diagnostics, and access to treatments and care. 

Rare Kidneys on the Hill Day is also a great way to connect with other people impacted by RKD and to be empowered! 

Below is all the information you'll need throughout Hill Day 2023.

Rare Kidneys on the Hill Day Overview

Tuesday, July 11th - Arrival in Washington, D.C. and Hill Day Rally Dinner

  • 4:00 p.m. - 6:00 p.m.
    The Grand Hyatt
    1000 H Street, N.W.
    Washington, D.C. 

  • 6:00-9:00 p.m.
    Rare Kidneys on the Hill Rally Dinner
    The Grand Hyatt
    1000 H Street, N.W.
    Washington, D.C. 
    Meet with advocates from your state or region, practice for your meetings, and fuel up with a kidney-friendly dinner.

Wednesday, July 12th - Meetings on Capitol Hill and Congressional Briefing

  • 8:30 a.m. Group photo on the U.S. Capitol steps (northeast side)
  • 9:00-11:30 a.m. Meetings with your members in the Senate
  • 12:15-1:15 p.m. Congressional Briefing and lunch
  • 1:30-4:00 p.m. Meetings with your members in the House of Representatives
  • 5:00 p.m. Adjourn 

Frequently Asked Questions

How do I get around DC on Hill Day?
The hotel (Grand Hyatt) is located mid-town and is metro accessible. It is 1.6 miles to the Capitol and an Uber, Lyft or taxi ride to the Capitol Building is suggested. From there, Advocates have varied schedules based on their appointments. Advocates will be responsible for their own transportation from Capitol Hill to their next stop. Most offices are walking distance from each other.

What if I have never been to a Hill Day and I don’t know my way around?
Don’t worry! Each group will have a Team Leader who is well-versed in Rare Kidneys on the Hill Day and they will guide you each step of the way! You will be walking from one office to another for up to 8 meetings.

How should I dress for Rare Kidneys on the Hill Day?
The dress code for Rare Kidneys on the Hill Day is business or business casual. The weather in July in DC can be very hot and humid, but indoors is air conditioned. We will also be doing a lot of walking so be sure to wear comfortable shoes! 

Note: We will be handing out NephCure branded Ties and Chiffon Scarves in NephCure colors (dark teal and light teal) if you would like to plan your dress accordingly!

With whom will I be meeting in each congressional office? 
Most likely you will be meeting with congressional staffers. These staffers are important because the actions that they recommend are usually adopted by the members of Congress for whom they work. It is also possible that you may meet directly with your congressional representative, but this will be based on his or her availability that day.

How should I plan my meals during Rare Kidneys on the Hill Day?
NephCure will be providing a low-sodium dinner at 6:15 p.m. on Tuesday, July 11, and a low-sodium lunch during the Congressional Briefing at 12:15 p.m. on Wednesday, July 12. You will be on your own for breakfast and dinner on July 12.


NephCure Hill Day Preparation Packet
Will be provided via email to all participants

Know Before You Go Webinar Recording
Click here to view the 'Know Before You Go' presentation to help guide you before Hill Day. Click here to download the PowerPoint presentation. The presentation includes an overview of the event schedule and logistics, a civics refresh, a review of suggested policy asks, guidance on how to connect your story to policy asks, and tips on how to amplify your advocacy using social media. 

Social Media Toolkit
Click here to access graphics and messages to share on social media before, during, and after Rare Kidney Disease Week.

Policy Action Flyer
Click here to learn why policy action is needed to improve the state of kidney care

Our 2023 Rare Kidney Disease Week Sponsors

Thank you for supporting the RKD community!

Travere logo
Novartis logo
Calliditas logo
Boehringer Ingelheim logo
Chinook logo